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Living with Parkinson's

 

What is Parkinson's?

"Parkinson's disease is a condition in which parts of the brain become progressively damaged over many years. Parkinson’s is caused by a loss of nerve cells that are responsible for producing a chemical called dopamine. If these cells are damaged or die, the amount of dopamine is reduced meaning that the part of the brain controlling movement and coordination, cannot work as normal, therefore movements become slow and abnormal."

My Personal Story

My mum was diagnosed with Parkinson’s disease in 2014, age 56, it was very upsetting for the whole family knowing that although, medication will help with building back damaged cells in her brain, this is only for a few years then the condition will decline. It was even harder to accept that she is still very young and won’t be able to enjoy her life to the full and play a part in her grandchildren’s life as she would love and deserves.

Living with Parkinson’s for 9 years now, I am pleased to say she is doing well with her medication and physiotherapy, she is active, still independent and enjoying her hobbies: gardening and baking. I’m so proud of her!

This year, I am taking part in a charity fundraiser for Parkinson’s UK. Running has been part of my weekly routine for more than 3 years! I’ve found keeping fit and being part of a great cause at the same time makes me feel good, knowing that I’m going to make a difference by raising money for such a great charity. 

I’m fundraising in the memory of my grandma that lived with Parkinson’s and of course for my mum and everyone who has to deal with this condition.

Nobody likes living with Parkinson’s, let’s find a cure!

All the money raised will directly fund the Parkinon’s UK research. Visit my fundraising page to see my progress!

Unfortunately, Parkinson’s not only affects the people living with this condition but also has a significant impact on family, friends and carers.

Therefore, is important to understand that Parkinson’s affects everyone differently, symptoms appear and develop in a different order and don’t progress at the same speed or same order.

The numbers

According to Parkinson’s UK,  around 145, 000 people live with this condition. With a growing and aging population, it is estimated a growth of nearly a fifth to 172, 000 by 2030.

NHS states that, most people with Parkinson's start to develop symptoms when they're over 50, although there are some people experiencing symptoms when they're under 40.

Symptoms

The 3 main symptoms of this condition include:

  • Involuntary tremor of particular parts of the body.
  • Movement becomes slow
  • Muscles become stiff and inflexible.

There are over 40 symptoms of Parkinson’s: from depression and anxiety to balance problems and memory loss. Each person can experience them differently and the order in which they appear, and the way symptoms progress can vary from person to person. It is important to know that not everyone will have all the symptoms.

As the condition progresses, the symptoms can get worse and can become difficult to carry out everyday activities without help.

Recommended Products for People Living with Parkinson's

Inspired by Story & Sons range of quality daily living aids and having my mum in mind, knowing what will help keep her independent and happier for longer, I have chosen a selection of their thoughtfully designed products:

  • Easy Music Player
  • Easi-Grip range
  • Talking Kitchen Scale and Jug
  • Surefoot Shower and Bath Board with Handle
  • Soxon Sock Aid
  • LED Sensor Light
  • Folding Walking Stick with Travel Bag

Information

If you need more help and advice Parkinson’s UK research charity helpline

0808 800 0303 can offer free and confidential advice.

Their website is packed with everything you need to know about Parkinson’s.